Hello Tristal:
For me it was a great pleasure to meet you you and your teammates, that you were really great. I have to tell you that was very enjoyable time spent with you. My answers will go behind your question with the same letter
Thanks
A kiss Mary
MORENO MARY Mary, thanks for wanting to celebrate World Parkinson's Day with us. Thank you for your example, your courage, your time, your positivity. Thanks for giving us this example of life.
What prompted you to share your experience with others through your blog "Strength and Courage" and your book "My Parkinson and I"?
Simply knowing that the world of Parkinson's own life, things you decrease or increase depending on the assume. I belong to a forum and read how some people do not take anything that is negative. Parkinson's disease is very hard and I am aware that in turn, much as you complain it will be gradual. The day I took it I decided to carry the disease as well as possible and involve as little as possible to my family and I got it.
In this long and difficult road to walk I play I learned many things. I learned that the quality of life depends largely on psychical and that not everyone understands, so I wanted to teach and measured My blog "Strength and courage" and my book "Parkinson's and I"
In your blog you say: "Friends do not abandon us or diminish us, it is us that we abandon them," And I ask, how? ...
Very simple: It is nice to be with a person who only talk about their problems, their disease (some true and others imagined) of the misfortunes that occurred in your family ... I mean, be a totally negative person and However the friend might endure, but she left because she thinks going to be bad when they find them ... suffer before their "off" when they do, then the memory.
What is the most difficult challenge you faced Parkinson's?
See how it is taking things that were mine and try to meet them by others who passed through my life without thinking of it, making them larger to meet to which I have no
What has taken and what gave you this disease?
I was walking away my grace, my stability and have me to hold to keep from falling, but I think I can not complain to me and left me with a sense of humor, making jokes about something that notes and answer to a friend when he went with a group of Parkinson Mary take pictures !!!... humorous answering what if we moved!. I have to say that I have always been creative, now that I have time I practice more often making pottery and other crafts, but most important is that now I am creating illusions that I try to accomplish. I HAVE MORE CAPACITY TO LOVE AND WHO LOVES ME RECEIVE
What do you think are fundamental pillars to overcome this disease, to learn to live with her, to feel that one is more than a person with Parkinson?
most fundamental thing is to be sufficiently recreándote smart to know that in an uncertain future will not get anything ... we must live the present and enjoy everything you can because when he comes, if it comes, and think about it. My motto is not to advance negative events if not already arrived.
How have you been working your autonomy, your independence? Despite this being a crippling disease?.
I am aware that people with Parkinson's degree like mine, are dependent on their caregiver ... that for me would be the worst thing that could happen, because even though there are times that I can not walk, I'm grabbing the walls and sometimes on all fours ... because is most gratifying for me to get on my own. This approach gives me more strength because I believe they are winning battles that the PK I feel that my strength will not decay.
What do you think is the best way to explain to the children or grandchildren
you have Parkinson?
I have five grandchildren and long ago, when one of them realized that something was wrong with me I said, "Grandma give me your hand I'll take you" and when I leave to another room I saw that the child began shuffle as I did. That day I realized it was time to tell and I did trauma without explaining it in a natural way
How do you feel when you see that aid dependency law, architectural barriers, the books on this subject are mostly developed by people who do not suffer any disability?
I think these people should know more about those affected to know for themselves what they really need to act accordingly.
Although each case is unique, what do you think you need a Parkinson's patient? What are your primary needs?
First you feel loved and when the time comes that your forces do not respond, get help with care and think about the dignity with which you lived the disease.
What do you think need to develop or offer partnerships to meet these needs? Advise
widely to family or caregivers of what Parkinson's disease and what it entails.
What advice would you give to family members and caregivers who are reading you right now?
That although it is true that the disease is very hard, not the worse living with negativity. Just work towards following my motto ... "you have to pull p'alante and trying to "take the bull by horns"
What are your new projects?
keep living as I am doing and give thanks to God for having achieved so far. Maria Moreno
